It's been a difficult weekend. After an amazing Friday, when Tony (aka Richard) stayed up most of the day and almost felt normal; the reality came back like a sucker punch on Saturday. Because Tony was feeling good Friday we decided to chance it and invite my Mom and sister up from Ottawa to come say "Hello!" to Jean and Richard (Tony's parents). I knew my sister's spouse, Greg, would have no objections to being the official Bar-B-Q'er. He's a real pro at it! Unfortunately, Tony's fatigue came back full force and he could only stay up for a short while to eat and that was it.
While we don't like to see him that tired, everyone understands the situation. I think he was the one who felt most disappointed. And, that is what is most difficult for everyone around - realising how much this disease has taken away from him and us. To make matters worse, the children had a major blow up late Saturday night; which made me wonder how we will ever get through this with our sanity intact. - ONE DAY AT A TIME - I have to keep reminding myself...
Tonight, Tony was depressed and wondering if he will ever get his strength back. He took two small walks (to the end of the street) today; but had to go to bed as soon as he came back in. The doctor had suggested exercise might give him more energy... but we're not there yet! As I told Tony, after he told me he only wants a normal summer - I think we will have to reinvent normal.
Sorry for rambling on... I hope you all had a wonderful Mother's Day. Musn't forget to mention that Richard attended the Jr Alouettes Football Camp this weekend and was voted most improved "wide receiver" (I believe). Congrats Rich! Luv ya!
That's it for now! Take good care!